Cystic Fibrosis Foundation11d
How I’m Advocating for the CF Community as Miss Alabama
Becoming friends with Maddie, who has cystic fibrosis, inspired me to begin raising CF awareness and fundraising from a young age. Now I’m eager to make a larger impact with the platform I have since ...
Cystic Fibrosis Foundation3d
Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance ...
Cystic Fibrosis Foundation5d
My Journey to an Autism and ADHD Diagnosis
Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...
Cystic Fibrosis Foundation4d
How We Found Strength and Support in the CF Community
This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited ...
Cystic Fibrosis Foundation9d
Why We Chose Not to Have Children
I imagine most people have vivid memories of the first date they went on with their spouse. Emily took me on a hike through Will Rogers State Park in Los Angeles. It was a perfect, blue-sky, Southern ...
Cystic Fibrosis Foundation4d
CF Foundation Comments on Maryland’s Prescription Drug Affordability Board Upper Payment Limit Action Plan
Dear Members of the Maryland Prescription Drug Affordability Board: On behalf of the people living with cystic fibrosis in Maryland, the Cystic Fibrosis Foundation writes to provide comments on the ...
Cystic Fibrosis Foundation10d
CF Foundation Responds to Request for Information on Hospital Outpatient and Ambulatory Surgical Center Payment Systems
Dear Secretary Becerra and Administrator Brooks-LaSure: The Cystic Fibrosis Foundation thanks the Centers for Medicare and Medicaid Services (CMS) for the opportunity to respond to the Medicare and ...
Cystic Fibrosis Foundation4d
CF Foundation Supports New York’s Proposal to Extend Cost-Sharing Reduction Subsidies
Dear Secretary Yellen and Secretary Becerra: On behalf of the nearly 1,700 people living with cystic fibrosis in New York, the Cystic Fibrosis Foundation appreciates the opportunity to submit comments ...
Cystic Fibrosis Foundation1mon
Raising A Child With CF in A Rural Area
Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...