Cystic Fibrosis Foundation3 天
Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance ...
Cystic Fibrosis Foundation12 年
Nebraska Chapter
The Nebraska chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation9 年
Tennessee Chapter
The Tennessee Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter covers East, Middle and Southeast Tennessee. Volunteers are the key to our success and the lifeblood of our ...
Cystic Fibrosis Foundation11 个月
Clinical Care Guidelines
To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base ...
Cystic Fibrosis Foundation5 天
My Journey to an Autism and ADHD Diagnosis
Growing up, I always felt a bit different. But with CF consuming so much of my life, I didn’t have the chance to explore it until Trikafta® stabilized my health. That’s when I was finally able to get ...
Cystic Fibrosis Foundation9 年
Central New York Chapter
The Central New York Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
Cystic Fibrosis Foundation2 年
Vascular Access Devices: PICCs and Ports
Who Needs Vascular Access Devices? Vascular access devices may help people with cystic fibrosis who need intravenous (IV) antibiotic treatments for more than just a few days, such as during an ...
Cystic Fibrosis Foundation13 年
Rocky Mountain Chapter
The Rocky Mountain Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get ...
Cystic Fibrosis Foundation10 个月
Restore CFTR: Exploring Treatments for Rare and Nonsense Mutations
The Cystic Fibrosis Foundation is aggressively pursuing potential treatments for people with CF who have nonsense and rare mutations who will not benefit from drugs known as modulators, which correct ...
Cystic Fibrosis Foundation2 年
Your CF Care Team
The health care professionals that make up your CF care team are experts in CF care. But you are the expert on the daily challenges of living with your CF. That means you play an essential role with ...
Cystic Fibrosis Foundation2 年
Types of CFTR Mutations
There are five classes of CFTR mutations: protein production, protein processing, gating, conduction, and insufficient protein. The most common CF mutation, F508del, is primarily considered to be a ...
Cystic Fibrosis Foundation2 年
CF Genetics: The Basics
Cystic fibrosis is caused by mutations in the gene that produces the cystic fibrosis transmembrane conductance regulator (CFTR) protein. In people with CF, mutations in the CFTR gene can disrupt the ...