Cystic Fibrosis Foundation3 天
Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance its Newborn Screening Initiative, pushing for better newborn screening ...
Cystic Fibrosis Foundation4 天
How We Found Strength and Support in the CF Community
When our son Javier was diagnosed with cystic fibrosis, we felt overwhelmed and isolated — especially as one of the only Hispanic families in our area. Through learning, advocacy, and active ...
Cystic Fibrosis Foundation4 天
CF Foundation Comments on Maryland’s Prescription Drug Affordability Board Upper Payment ...
Dear Members of the Maryland Prescription Drug Affordability Board: On behalf of the people living with cystic fibrosis in Maryland, the Cystic Fibrosis Foundation writes to provide comments on the ...
Cystic Fibrosis Foundation4 天
CF Foundation Supports New York’s Proposal to Extend Cost-Sharing Reduction Subsidies
Dear Secretary Yellen and Secretary Becerra: On behalf of the nearly 1,700 people living with cystic fibrosis in New York, the Cystic Fibrosis Foundation appreciates the opportunity to submit comments ...
Cystic Fibrosis Foundation5 天
My Journey to an Autism and ADHD Diagnosis
Growing up, I always felt a bit different. But with CF consuming so much of my life, I didn’t have the chance to explore it until Trikafta® stabilized my health. That’s when I was finally able to get ...