DEBRA UK - The butterfly skin charity
网页DEBRA is a national charity and patient support organisation for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or …
debra
网页debra of America is a national nonprofit organization dedicated to improving the lives of people with Epidermolysis Bullosa (EB) through supportive programs and funding the most innovative research for treatments and a cure. Explore further to learn how we help those with EB and their families and how you can get involved in our mission.
Who we are | DEBRA UK - The butterfly skin charity
网页DEBRA is the national charity supporting individuals and families affected by Epidermolysis Bullosa (EB). We fund research to improve treatment and cure EB
Who we are | DEBRA UK - The butterfly skin charity
网页2023 年会员周末期间 debra 研究和会员服务团队的工作人员。 DEBRA 由 Phyllis Hilton 于 1978 年创立，其女儿 Debra 大疱性表皮松解症 (EB) ，作为世界上第一个针对 EB 患者的患者支持小组。
Home | DEBRA International
网页DEBRA International is the central body for a worldwide network of nearly 50 national DEBRA and EB support groups working on behalf of those affected by the genetic skin blistering condition epidermolysis bullosa (EB)
Home - Debra Ireland
网页We are the largest funder in Ireland of EB research. We drive research into effective treatments and cures for all types EB. Rare diseases, such as EB, often get overlooked when it comes to the development of new treatments. And because of the various forms of EB and its complexity, treatments and a cure are not universal.
DEBRA UK | Faversham - Facebook
网页DEBRA UK, Faversham. 14,017 likes · 1,953 talking about this · 25 were here. National charity supporting people with the painful skin condition, Epidermolysis Bullosa (EB).
DEBRA Canada
网页Get your DEBRA Butterfly Ball Cap, CLICK HERE. Epidermolysis Bullosa (EB) is the name for a group of painful genetic skin conditions that cause the skin to tear and blister at the slightest touch. The name comes from ‘epiderm’ - the outer layer of skin, ‘lysis’ - the breakdown of cells and ‘bullosa’ - blisters.
Our history | DEBRA UK - The butterfly skin charity
网页DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had dystrophic EB – the charity was the world’s first EB patient support group.
Donate - Donate online | DEBRA UK - The butterfly skin charity
网页DEBRA is the national charity supporting individuals and families affected by Epidermolysis Bullosa (EB). We fund research to improve treatment and cure EB